While media provides excellent coverage to increase our awareness of and fundraising for certain "high-profile" diseases, this same media typically avoids covering many other common and serious diseases. For example, diseases that have an average 99% fatality and effect more than 1/2500 births. Our angel was diagnosed with a severe and fatal form of Turner Syndrome. She fought a hard battle for life which she ultimately lost at 16 weeks 6 days. Nova Tori Biggs was born sleeping at 7:26 am August 9, 2016. Our beautiful granddaughter weighed just 129g. We do the Buds and Butterflies walk in her memory.